day 37

Day 37

No surgery. Not worth the risk. Now we wait and see how her body responds to the new antibiotics. Will update after I eat and my girl eats. You know how I get when I'm hungry.

Ok, we have ALL eaten. She is sleeping and Nick is on the road back to Ruston to start working on a special project for the girls. I just finished "nesting" in our room the only way I can - throwing away trash and folding blankets and clothes. These menial tasks make me feel a little normal and help turn a small room into home. The laundry area is the rocking chair. The kitchen is our goodie basket on the counter. The office is the sleeping chair. My bed, a new blow up mattress, is folded neatly in the laundry area topped with Tinker Bell blankets 1 and 2.

Dr. Wheeler just left our room with the latest news. The plan is to monitor her fever pattern and blood samples for the next two days to see if these antibiotics are fighting the infection. Also, by Monday, anything that is going to grow in the lab from her previous samples will show up. He said that he is as equally frustrated in a few days as we have been over the past well, 37 days. The "what" and "how" are still unclear. Thus, we monitor and wait.

I do feel the need to give a shout out to the nurses at Sutton's. If ANY of you are still following Harper's progress please know that we miss you terribly. I know there is a difference between being on the regular floor and PICU. We are relieved to be on a regular floor here. While we totally appreciate the quality of overall care and the team of doctors here, the nurses just don't have the magic touch like the ones in Shreveport. Since I can't name names, Harper and I want to thank Miss K, Miss M, Miss C, Mr G, Mr C, other Miss M, Miss J, other Miss J and Drs Q, F and S, along with the respiratory staff: Mr J, Miss R, Miss M, Mr B, other Mr B, for the care she received from each of you.